Research Motor Neurone (RMN) was founded in 2007, for the purpose of promoting and facilitating research into the causes and treatments of motor neurone disease (MND), also known as ALS. RMN also strives to increase awareness of this incurable disease at both a national and international level.
Ongoing research is needed to discover the cause, treatment and methods of improving quality of life for MND sufferers and their families.
The generous support from our donors helps us make progress in finding ways to help those who suffer from this debilitating condition. It is through the fundraising endeavours of all our sponsors that essential funds are raised to support RMN and our ongoing vital research. Thank you all for your kindness and continued support.
Tim Sheehy and MND Project MinE Ireland
Our thoughts are with Tim Sheehy and his family at this sad time. Tim Sheehy, a well-known Irish businessman, was diagnosed with MND in late 2014. Aware of the gravity of his condition, Tim was interested in finding out about the research being carried out worldwide, and in Ireland, understanding that intensive study of the disease is the only way to get results and improve the prospects of those affected. Tim discovered that researchers in Trinity, led by Professor Orla Hardiman, work at the highest level to investigate MND from many perspectives including genetics, cell and molecular biology and drug development.
Tim, who sadly passed on December 13, wanted one of his legacies to be making a contribution to progressing MND research for the sake of future generations. During the last months of his life Tim, who was involved in a number of causes and organisations and was a highly compassionate individual. He put his efforts towards creating a stronger foundation for MND research in Ireland and internationally through Project MinE – a ground-breaking large-scale international investigation into MND’s genetic causes. To learn more about Tim’s story, please watch his inspiring video:
You can find out more about this crowdfunding initiative, which hopes to find the genes that cause MND, on the Project MinE Ireland website:
Today with Sean O’Rourke: Project MinE
Listen back to RTE Radio 1 to hear MND patient Tim Sheehy and Prof Orla Hardiman discuss why they are supporting Project MinE Ireland, a crowdfunding project that aims to find the genes that cause MND.